Thursday, December 2, 2010
Raegan
I am doing so good with my new splints. Mary, my therapist, said I was doing so good in them she just couldn't believe it! She said they give me stability in my spine, whatever that means, I just laugh at her. I wore them all through my therapy session and did much better with sitting on the ball than I ever have! So I smiled while I was sitting on my yellow ball, I have not done that before, I am happy :)
Megan
My tummy is still not better. I have been so close to throwing up today but my Mommy keeps turning my food on and off to try to keep me from losing the food I need so much. I don't know why my stomach acts up so much, I really don't like it. My Mommy is worried because I have lost some weight. I don't have as much energy either so I am not laughing as much. It makes my Mommy sad when I don't laugh. I want to make her feel better but she needs to make me feel better first. She called the doctor for me and got my formula changed to something called Elecare. My friends Jordyn and Abbie are on it and their Mommies say it works really good for them. I am glad my Mommy found this support group, I think it helps her take much better care of me. She is much happier, which means so am I! I sure hope this new food takes care of my tummy hurts. It makes me cry and cry. Such sad heartbreaking cries my Mommy says, but I can't help it. I like it when my Mommy rubs my tummy though, it makes it feel so much better and I always give her a smile when she does. I'll let you know in the next few days if the new food is working or not! fingers crossed :)
Wednesday, December 1, 2010
Vickie
Time for the insomnia to set in. Easton is having his surgery on the 20th. Well that is when it is scheduled anyway, rescheduled from November because he had a cold. I tend to worry. Not that it can add an inch to my height I know, but I do it anyway. I know that every surgery could be Easton's last. I try not to think negatively, but I feel I have to prepare myself. I wake up in the nights leading up to his surgery just to watch him breath. To hear him breath, to see his chest move up and down. I sleep with him in my bed so that I can reach out and feel his foot, his hand, his leg. Feel the warmth of him and know that his heart is still beating. I take nothing for granted. Every smile means the world to me. I wish I could bottle up his smiles and his laughter. They light up my life like a rainbow straight from heaven. I don't know how I will ever live without them, without him, without my Easton. It is so painful to even think about, and yet I worry. I beg God, like a little child, to have my way. I pound my fists and kick my legs and scream, and a small voice whispers...Thy will be done Lord. Peace comes over me because I know His way is best. Yet, before the surgery date has come I will have many more arguments with God, trying to convince Him that my will be done, just for a little while longer. And so I worry...Cleaning his teeth, what a big deal right? Why should it have to be such a problem. My poor little guy, I would take your place if I could, if only for a little while, just so you wouldn't have to suffer so. I am listening to his breathing as I type, I love the rhythmic sound it has, Easton's own little snore. Such a beautiful sound. Worry has become a constant companion of mine these past few years, I imagine it gives me some sense of power, some sense of control over a situation that I honestly have very little. Besides taking care of these babies, I believe it is what I do best! I try to keep my sense of humor about me, I try to find laughter wherever I can, it saves my sanity....I think. Maybe writing all of this into this blog will help me get it all out of my head and then I can sleep..? That would be nice :)
Raegan got her new splints!
My Mommy took me to a place called Shriner's yesterday. I like it there, I think it smells nice, and the people are really funny to me. This doctor that I have seen before, that I don't like very much, came into see me and I yelled at him. Last time I seen him he hurt my legs when he put this pink tape stuff on it. It smelled bad and he had to peel it off of my legs, but when it came off it looked just like my little legs! Anyway, he was a lot nicer this time. He put these funny looking things on my legs, they have pads over my knees because they think that will keep me from pushing out of them..they don't know me very well. So I laughed at the doctor while he was putting them on. I cried on the way home cause they were hurting my ankles so when we got home my Mommy put on pants and socks and now they don't hurt so much! My poor Mommy had to take me to get my splints while she was sick, I felt bad for her, I tried to tell her I didn't need them yet, but she wouldn't listen to me, she is so stubborn that way, I guess that is where I get it from!
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